Celine Dion’s Sister Updates Fans As The Singer Continues Fight Against Rare Neurological Disorder

Celine Dion’s sister, Claudette, has given an update on the My Heart Will Go On singer’s health. Dion is currently bravely battling Stiff-Person Syndrome and is focused on continuing to build strength as she figures out how to live with this rare illness. Here’s what we know:

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What did Celine Dion’s sister say about her health?

During a recent interview with Hello! Canada magazine, Claudette Dion shared that her sister, Celine, is determined to recover from Stiff Person Syndrome. While the family is hopeful, Claudette also added that the family is “crossing [their] fingers that researchers will find a remedy for this awful illness.”

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“It’s an illness we know so little about,” Claudette commented. “There are spasms — they’re impossible to control. You know [how] people often jump up in the night because of a cramp in the leg or the calf? It’s a bit like that, but in all muscles,” she adds, upset. “There’s little we can do to support her, to alleviate her pain.”

Stiff Person Syndrome: What Is Celine Dion Dealing With?

Back in December 2022, Celine Dion stunned her millions of fans when she revealed her diagnosis of Stiff-Person Syndrome which is basically a progressive neurological disorder that causes muscle rigidity and excruciating spasms throughout the body. Symptoms typically develop in the limbs and torso, worsening over time. During an emotional Instagram video, she shared that her medical team was continually working to get a better understanding of the rare condition and its impact on the singer-songwriter’s day-to-day life.

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Upon learning about her diagnosis, Celine Dion initially canceled her Courage World Tour concerts scheduled in Europe and the U.K. However, she later confirmed via a statement in May 2022 that she had canceled the entire tour, with all dates through 2023 and 2024 affected by the cancellation. “Unfortunately, the spasms affect every aspect of my daily life, sometimes causing difficulties when I walk and not allowing me to use my vocal cords to sing the way I’m used to,” she said at the time.